“A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” – Christopher Reeve
Everywhere we go, we are surrounded by heroes. A hero can be anyone. Being a hero means that you’ve been able to make a difference in someone else’s life. Whether you’ve pulled someone from a burning building or were the only reason that a person smiled today, you’re a hero. Then you have the superheroes, the people that make an unbelievable difference in society. Christopher Reeve, the original Superman, will always be a legend. Most people know him for his cape and tights, but in my eyes he’s a superhero because of a completely different battle – the one that was going on inside his body. Christopher Reeve fought Mastocytosis, a devastating, incurable, and life-threatening disease. The fact that Reeve was able to be Superman while he had a war going on inside his own body definitely qualifies him as a superhero. Only the toughest can battle mast cell disease; I know this because I am fighting it too.
Mast cell disease has definitely made a huge impact on my life. It has taken a lot away from me, but at the same time, I’ve gained from it. Once the disease took over, I developed a whole new perspective on life. It brought me back to reality. You never truly understand the complexity of life until something happens and reality slaps you in the face. It’s probably safe to say that the majority of our society is completely oblivious to everything going on in our world. We as a society take so much for granted and rarely spend time thinking about how our lives could be drastically changed within a split second. You or a loved one could be involved in a serious accident, have your lives forever changed by a natural disaster, or like me, be given a life-altering diagnosis. After I was diagnosed, I felt like everything that I had previously worked so hard to achieve was thrown away. I was a 3rd degree black belt in TaeKwonDo and very close to becoming an instructor at the TaeKwonDo academy. I had good grades in school with plans to go to a university and later pursue a career in the medical field. I never thought that I would later be on so many medications that I couldn’t think for myself or that I would have to rely on family members to carry me around the house because I couldn’t stand on my own. Life as I knew it was over, but I didn’t know at the time that maybe this would be a good thing.
“The reason people find it so hard to be happy is that they always see the past better than it was, the present worse than it is, and the future less resolved than it will be.” – Marcel Pagnol
It seemed like my life was over. I couldn’t understand why this had to happen to ME. Why did I have to be diagnosed with some bizarre and unheard of disease? Couldn’t I have been diagnosed with a disease that society was familiar with and knew about instead of this one? After going months with these thoughts running through my head, I finally realized that maybe all of this really did happen to me for a reason. As Oprah Winfrey would say, I had my “Aha!” moment.
Sometimes it’s hard for me to understand why I have to battle mast cell disease and the other chronic illnesses that come along with it. Why can’t I be normal? I’ve asked myself this question a thousand times, and I’ve finally realized that there isn’t really anything special about normalcy. Every hero has something special about them that nobody else possesses; no hero is normal. Maybe, just maybe, I am supposed to be another hero.
3 thoughts on “Living with Mast Cell Disease- Heroes”
What a wonderful first post– absolutely love it. Thank you for being you, you are a SUPERHERO.
I just came across from The Other Courtney article that you guys did. I’m looking forward seeing this blog develop! Brilliant first article x
Hey Brynn!! My name is Amanda and I clicked on your website through Crystal Boxburgers facebook. I have systemic masto, I am 25 live in okc and have been sick since I was 15. I have been reading your stuff and looking thru ur pics and I relate to you in a lot of ways! I am still pretty sick but remember everything that you seem to be going thru, going thru myself when i was around that age. Altho, Id have to say, you came with accepting it a lot better than I did, it took me soooo many years to get to your point, I was also one of the first ppl diagnosed in okc area and knew nobody at the time with my disease, now I have a lot of friends, really close friends in fact, that I can talk to and it makes SUCH a difference! Crystal was one of the 2 ladies I first started talking to in 2006, they have daughters my age so I call Crystal my masto mama lol. Id like to keep in contacct with you and wanted to let you know I am always here if you want to talk or have any questions or anything at all. Have a wonderful masto day!! LOL-Sincerely, Amanda T. 🙂