Thanks for visiting my new website! For as long as I can remember, friends and family members have told me that I should have my own protective bubble to keep me safe from the world- So I have decided to create one myself. Welcome to my bubble! It is here where I will continue to share my journey and thoughts on what it is like to live a day in the life of Brynn.
Those of you that don’t already know me may be wondering, “Why the bubble?” I have been sick and have had bizarre medical problems for the better part of my teenage years. After seven years of searching for answers, I was diagnosed with Mast Cell Disease and POTS (Postural Orthostatic Tachycardia Syndrome) in 2012. To explain the illnesses in the most basic way possible- Mast Cell Disease causes me to be allergic to just about everything. I have so many severe food allergies that I rely on a feeding tube to provide me with proper nutrition. I am currently one of very few people who are on a 24/7 IV Benadryl pump! POTS is an autonomic dysfunction that causes my blood pressure to drop and heart rate to skyrocket upon change in position. To put it in simpler terms, POTS causes me to pass out if I stand for more than a few minutes at a time. I rely on a wheelchair to help me get around so that I am not constantly having to stop what I’m doing to find a place to sit when I start getting lightheaded and dizzy. When I developed the two illnesses, my friends would always joke that I needed to either live in a bubble or cover myself in bubble wrap before ever leaving my house!
Please bear with me as we continue to build the site. Very exciting things are in the works and I can’t wait to share it with everyone!