I remember being a little girl and staring at the sun every time someone told me that looking directly at the sun was bad for your eyes. “You’ll go blind”, they’d say! I wanted to prove them wrong. I could have stared at the sun forever (Don’t try this at home, kids.), wanting to prove to others that they were wrong and I was right. I could prove that staring at the sun wouldn’t cause you to go blind– or so I hoped. I probably should have known then that I wasn’t like most people. That should have been the foreshadowing that indicated my spirit was different from others. I was a fighter. I fought to win every battle I encountered, whether it be as small as fighting to prove that I was correct (even if I knew that I was wrong) or as intimidating as fighting for my life in the ICU. I face my battles. My defiance has proven to go a long way, because here I am, defying the odds.

Defiance isn’t a bad quality to own. In fact, I believe my defiance has saved my life. It’s funny to look back on my childhood and notice how much time I spent fighting to prove other people wrong. My earliest memories go back to all the tantrums I’d throw if I didn’t get my way. I hated to lose. My family and friends used to let me win games of Candy Land and Chutes and Ladders because if I didn’t win, I’d insist on playing until I was victorious. Losing won’t kill you. I can’t tell you how often I heard those words. Whenever I was scolded for being a sore loser, I was always asked why I couldn’t tolerate letting someone else win. I now understand that my fighting spirit wasn’t all for nothing. We all have something that we are passionate about fighting for– When I think of the words “win” and “lose”, I think of a game of football. There is no tie; you win or you lose. I view my battle with illness the same way. Every day that I get up in the morning and get dressed is another day that I refuse to cave to my circumstances. Like playing football, I have tests and challenges that arise with each spiral of events that come my way. Each fight (football game) leads to situations that become a little more (or a lot more) intense with more at stake. Each game feels a little more important than the one before it. To make it to the bowl games, football teams must first do well in the play-offs. If I make a goal to participate in a 5k, it may be a good idea to know that I can at least take the dog for a short walk. Thanks to my defiant ways, I often find myself in situations that I would rather not meet.

After my health began to spiral out of control, I had to fight harder and harder to prove myself. I’d overestimate my abilities because I felt that I was the only one who believed in me. I didn’t understand why friends would attempt to talk me out of an outrageous idea. Did they really doubt my abilities that strongly?  When I look back on past events, I realize that people didn’t doubt me as much as I’d convinced myself that they did. Sometimes I just obsessed over stupid ideas… Ideas that most “normal” people wouldn’t even consider entertaining, much less a medically fragile individual like myself. When I begin to sense a feeling of doubt, my defiance kicks into full gear and I fight. I fight like my life depends on it, because sometimes it does.

Brynn’s 3rd degree black belt testing in 2010 (before health decline)

I reached the rank of 3rd degree black belt in TaeKwonDo as a result of being defiant towards people who said that girls couldn’t be successful martial artists. Girls are weak. All girls do is cry. If you win a sparring match against a male, it’s because he let you win. Guys aren’t supposed to hit girls. It’s funny to hear a girl say she’s going to be a black belt. You fight like a girl. I’ve heard it all. Knowing that people doubted my skill lit a fire inside of me– the desire to prove that I was more than capable of doing anything I set my mind to accomplishing. It was the same fire burning inside me that gave me the strength to keep fighting the condition that continued to progress within my body. It’s the fire that saves my life. My defiance has saved my life.

Learning to walk in leg braces in January 2014 to riding bike in March 2016

I no longer believe that defiance is an unattractive trait to possess. Defiance is a mindset that belongs to warriors. It saves lives, mine included.


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